Part 1: My Toxic Year
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- Parent Category: Blogs
- Created on Monday, 14 May 2012 10:56
- Last Updated on Wednesday, 16 May 2012 09:18
- Published on 14 May 2012
- Written by Jules
- Hits: 1158
Me: “Why? Because anyone who would leave you must be crazy?”
Him: “No, because you are out of control.”
Me: “That's a lie; I'm making decisions based on your history of shitty behavior- toward me, toward my family and even towards your own daughter. All of the things you have done to put me into a deep depression.”
Him: “Bullshit”, and then he spit a sunflower shell onto his dirty jean leg. My man was classy.
Me: “That's a really productive answer. How does that help me understand your behavior?”
I walk away; I go upstairs to the living room to play with my two year old daughter. I had not seen Kelsey in a few days. The last time I saw her we were sitting on the floor in the living room of our home, we were sorting out linens and cleaning out the linen closet. I was packing items that were of value to me, I was packing and trying to secretly get away from that house, from that marriage, from that life. As she played on my lap, helping me fold, my husband barged in, tore her from me, and turned and walked out the door without a word. I tried to follow, but he had thought ahead and ripped a part out of my old Honda Accord.
Now I am here.
Mental Health is Everyone's Health
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- Parent Category: Blogs
- Created on Wednesday, 09 May 2012 07:10
- Last Updated on Wednesday, 09 May 2012 07:40
- Published on 09 May 2012
- Written by Jules
- Hits: 597
"Why do you ask?"
"Because you are acting a little funny.
"I have had this conversation more than one time since 1987. It's a question that seems to be okay to ask a Bipolar patient.
Have you ever heard this conversation?
"Did you take your beta blocker today?"
"Why do you ask?"
"Well your face looks a little red."
Of course you haven't.
When someone's face is a little red, that would be a sunburn right? It certainly does not mean someone is about to have a heart attack. But when a Bipolar person is a little cheery, they must be manic. When they are a little down, there is no way they just watched some sad movie. They have got to be getting depressed. I don't know a whole lot about heart medications. My husband takes them, and I really don't think that in the time we have been married that he has been 100% compliant, and I am certain that I would not be able to tell the days that he wasn't. Similarly, if I went for a day, or even two without taking my mood stabilizer or my antidepressant, there would be no change in my behavior. Just as it takes a few weeks for these medications to reach a therapeutic level in my system, it takes more than a day for me to show any sign of not taking them.To ask me if my behavior on one particular day is the result of not taking my medication on that day is not really insulting, rather it is endemic of the lack of understanding that most people have about how mental illness is treated or what the basic symptoms of some of the most common psychiatric disorders they are likely to encounter would be.
Why don't we understand mental health in society, or even in our own families?
It's been a long time since Ken Kesey gave us "One Flew Over the Cuckoo's Nest" (1963), the same year that Sylvia Plath's only novel "The Bell Jar" was released under her pen name Victoria Lucas. Could it be that we can accept mental health, and mental illness as a topic of entertainment and popular culture, as far back as the early sixties, but now in the 2000's, I am still being asked if not taking my meds on one given day will change my behavior? And, let's talk about Cuckoo's Nest. A book turned into a film, a film that my first husband brought to me on VHS to watch on the shared VCR, in the lounge area of the psychiatric facility I was in. A very different place then the facility portrayed in that famous film, but still not the most fantastic place to spend any time. (And oh ya that really happened, and he thought that was really funny.)
Psychiatric disorders have stigma written all over them, and our doctors and therapists are not the ones doing a thing about removing the stigma. It's the communities organized by NAMI and WEGO and others you will encounter online, including grass roots groups on Twitter and Facebook. I would like to add Chronically Awesome to this group of communities as we grow and change the landscape of how mental illness is taken in under the umbrella of all chronic illness, and not isolated into a corner of stigma with the "crazy kids."
So I have THAT going for me!
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- Parent Category: Blogs
- Created on Monday, 07 May 2012 13:10
- Last Updated on Monday, 07 May 2012 13:28
- Published on 07 May 2012
- Written by Jules
- Hits: 638
Ok, so I just did. I just got over myself. I did that by writing an entire post and deleting it. I wrote a post about being honest in a way that did not sound like whining, and somehow it came off as a total whiny bitchfest.
I am awesome that way.
I probably should enlist the use of a blog calendar. I should plan ahead what I am going to write about so that this sort of thing doesn't happen. But I like my organic, straight from the bowels of my bowels posts. (those are pretty deep, by the way)
The stuff that has been going on lately around my very, small real life world has been harder to face then I think I really have cared to, well - face. I have always known, and even wrote in my "About" that there has been something askew with me since I was a child. The fact that everything hurt me in a way that was just not normal is a very sharp memory for me. The recollection of popping knees and neck and wrists isn't something that has just come back to my memory since my visit to UCLA recently, it's always been with me.
May is Lupus Awareness Month
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- Parent Category: Blogs
- Created on Tuesday, 01 May 2012 21:15
- Last Updated on Tuesday, 01 May 2012 21:23
- Published on 01 May 2012
- Written by Jules
- Hits: 441
May is Lupus Awareness Month. And while some of us have a whole life to live with Lupus, all we ask is for one month to give you some facts about this condition so that you might make a choice to help us save lives.
May 18th is World Lupus Day. On this day we ask you to take it a step further and wear the single coolest color on the plant: Purple. When you put on purple, wear it to tell the story, wear it to change the lives of people like me, people you love and care about.
Here is the next step:
I Did It! I finished the #HAWMC Challenge
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- Parent Category: Blogs
- Created on Tuesday, 01 May 2012 08:28
- Last Updated on Tuesday, 01 May 2012 10:18
- Published on 01 May 2012
- Written by Jules
- Hits: 195
"I knew that she could do it and indeed she did!"
Did I know that I could do it? In some ways yes, I did know that I could do it. What I did not know was that there could be so many things, in a mere thirty days that would pop up in my life and make wriitng thirty posts seems so difficult.
I could have written a book in this amount of time when I consider all of the other things I did.
Ok maybe not, but it sure felt like it.
This month I did more than write thirty posts. This month I did something I never imagined doing. I sort of found my direction, or calling. I had been lost for almost a year. I was blogging and reaching out to those in need with my "Chronically Awesome" message, but I was really just swimming in one pond, not ever reaching out beyond my very limited shores.
HAWMC made me realize the power of blogging. I always knew what blogging did for me, but I didn't realize that so many others had a blog in them, had the power of words in them that were stuck, just waiting to come out.



